{"id":10286,"date":"2017-06-11T03:12:58","date_gmt":"2017-06-11T01:12:58","guid":{"rendered":"https:\/\/haberler.dk\/tr\/?p=10286"},"modified":"2021-10-03T06:33:16","modified_gmt":"2021-10-03T04:33:16","slug":"yasamaz-dedikleri-hatice-3-universite-bitirdi","status":"publish","type":"post","link":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/turkiye\/yasamaz-dedikleri-hatice-3-universite-bitirdi\/10286\/","title":{"rendered":"“Ya\u015famaz” dedikleri Hatice, 3 \u00fcniversite bitirdi"},"content":{"rendered":"

\u0130zmir’de 10 ayl\u0131kken spinal muskuler atrofi (SMA) te\u015fhisi konulan, doktorlar\u0131n 2 y\u0131l \u00f6m\u00fcr bi\u00e7ti\u011fi, v\u00fccudundaki istemli kaslar\u0131 g\u00fcnden g\u00fcne g\u00fc\u00e7s\u00fczle\u015ferek eriyen 36 ya\u015f\u0131ndaki Hatice \u00d6zkan, 3 \u00fcniversite bitirdi. Halen 2 \u00fcniversitede \u00f6\u011frenim g\u00f6ren \u00d6zkan ayr\u0131ca 2 y\u00fcksek lisans program\u0131na devam ediyor.<\/p>\n

\u0130zmir\u2019in Narl\u0131dere il\u00e7esinde hen\u00fcz 10 ayl\u0131kken SMA te\u015fhisi konulan \u00d6zkan, v\u00fccudundaki kol ve bacak kaslar\u0131n\u0131n her ge\u00e7en g\u00fcn g\u00fc\u00e7s\u00fczle\u015fip erimesine ra\u011fmen ya\u015fam azmiyle herkese \u00f6rnek oluyor.<\/p>\n

Manisa’da \u00f6zel bir kafenin davetlisi olarak vatanda\u015flara ya\u015fam\u0131na dair seminer veren ve hastal\u0131\u011f\u0131yla ilgili insanlar\u0131 ayd\u0131nlatan \u00d6zkan, en b\u00fcy\u00fck deste\u011fi olan anne ve baba sevgisiyle hayata kalmay\u0131 ba\u015fard\u0131\u011f\u0131n\u0131 s\u00f6yledi.<\/p>\n

Hastal\u0131\u011f\u0131 sebebiyle \u00f6\u011frenime ara verdi\u011fini belirten \u00d6zkan, “\u0130lkokul, ortaokul ve liseyi d\u0131\u015far\u0131dan bitirdim. Ard\u0131ndan Anadolu \u00dcniversitesinde \u0130ktisat Fak\u00fcltesi Kamu Y\u00f6netimi ve Atat\u00fcrk \u00dcniversitesinde Adalet B\u00f6l\u00fcm\u00fc ile Reklamc\u0131l\u0131k B\u00f6l\u00fcm\u00fc okudum. Ayr\u0131ca Anadolu \u00dcniversitesinde Halkla \u0130li\u015fkiler B\u00f6l\u00fcm\u00fc ve \u0130stanbul \u00dcniversitesi\u2019nde Sosyoloji B\u00f6l\u00fcm\u00fc \u00f6\u011frencisiyim. Ayn\u0131 anda Konya Sel\u00e7uk \u00dcniversitesi Bilgisayar Okutmanl\u0131\u011f\u0131 B\u00f6l\u00fcm\u00fcnde ve Amerika\u2019n\u0131n Aston \u00dcniversitesi Psikoloji B\u00f6l\u00fcm\u00fcnde y\u00fcksek lisans yap\u0131yorum. ‘E\u011fitim zordu, vaz ge\u00e7tim’ diyenlere; benim i\u00e7in de zordu, hi\u00e7 kolay olmad\u0131. Ama hayat zor ve zor diye vaz ge\u00e7miyoruz.”<\/p>\n

SMA hastalar\u0131n\u0131n aileleriyle birlikte hastal\u0131\u011f\u0131 yenebilece\u011fini ifade eden Hatice \u00d6zkan:<\/p>\n

“Ailemin deste\u011fini \u00e7ok g\u00f6rd\u00fcm. Benim kadar \u015fansl\u0131 olmayan engelliler de var. \u015eimdi benim burada onlara anlatt\u0131klar\u0131m hikaye geliyor. Ama s\u00f6yledi\u011fim her \u015feyi maalesef ya\u015fayan biliyor. Hastal\u0131\u011f\u0131m\u0131 anlatarak SMA hastalar\u0131n\u0131n neler ba\u015farabilece\u011fini ve neler yapabilece\u011fini, ya\u015fad\u0131\u011f\u0131m\u0131 anlatarak insanlara rol modeli olma derdindeyim. \u0130nsanlar\u0131 motive etmek i\u00e7in bu t\u00fcr toplant\u0131lar yap\u0131yorum.”<\/p>\n

\"\"<\/p>\n

Hatice’nin babas\u0131 emekli asker Murat \u00d6zkan da k\u0131z\u0131na yard\u0131m etmekten onur duydu\u011funu belirterek \u015f\u00f6yle konu\u015ftu:<\/p>\n

“K\u0131z\u0131m \u015fu anda 36 ya\u015f\u0131nda. 3 \u00fcniversite bitirmi\u015f durumda. 2 \u00fcniversiteye devam ediyor ve 2 tane de y\u00fcksek lisans\u0131 da ayn\u0131 \u015fekilde devam ediyor. K\u0131z\u0131m\u0131n 9 ayl\u0131kken ba\u015flad\u0131\u011f\u0131 ve 36 y\u0131ld\u0131r devam eden rahats\u0131zl\u0131\u011f\u0131 var. Ancak k\u0131z\u0131m\u0131n ya\u015fam m\u00fccadelesi azmi ve bizimde katk\u0131m\u0131zla bu hastal\u0131kla m\u00fccadele delmeyi ba\u015fard\u0131k. \u015eu an k\u0131z\u0131m sosyal alanda, sosyal medyada insanlar, gerekli ileti\u015fimi sa\u011flayarak en az\u0131ndan bu t\u00fcr rahats\u0131zl\u0131\u011f\u0131 olan insanlar\u0131n bizler gibi 36 y\u0131l sonra ara\u015ft\u0131r\u0131p \u00f6\u011frenmek yerine \u00f6n bilgilerle haz\u0131r vaziyette aileler \u00e7ocuklar\u0131na ve kendilerine haz\u0131rlans\u0131nlar diye duyarl\u0131l\u0131k sa\u011fl\u0131yor.”<\/p>\n

D\u00f6nd\u00fc \u00d6zkan ise ikinci \u00e7ocuklar\u0131 olan Hatice’ye 10 ayl\u0131kken, v\u00fccudundaki istemli kaslar\u0131n g\u00fcnden g\u00fcne kuvvetsizle\u015ferek erimesine yol a\u00e7an ve ALS hastal\u0131\u011f\u0131n\u0131n benzeri olan SMA te\u015fhisi konuldu\u011funu s\u00f6yledi.<\/p>\n

Hayatlar\u0131n\u0131 k\u0131z\u0131n\u0131n hastal\u0131\u011f\u0131na uyarlad\u0131klar\u0131n\u0131 anlatan anne \u00d6zkan, “Hayat\u0131m\u0131z\u0131 k\u0131z\u0131m\u0131z\u0131n ya\u015fam \u015fartlar\u0131na g\u00f6re \u015fekillendirdik. Bir yere g\u00f6t\u00fcr\u00fcrken anne ve baba olarak hep birlikte gidiyoruz. K\u0131z\u0131m\u0131z ne isterse, nas\u0131l rahat edebilir ve neyden ho\u015flan\u0131rsa ona g\u00f6re gidebiliyoruz. K\u0131z\u0131m\u0131n rahat edemedi\u011fi yere gidemiyoruz. K\u0131z\u0131m da kalabal\u0131\u011fa girmeyi seviyor kendisini evde kapatmak istemiyor. Okumay\u0131 seviyor onun i\u00e7in \u015fu an be\u015finci \u00fcniversitesini okuyor. Onunla birlikte s\u0131navlara beraber giriyoruz. Yabanc\u0131 dil kurslar\u0131na gidiyorduk. Bilgisayar kurslar\u0131nda bir \u015fey istedik\u00e7e ben s\u00fcrekli yan\u0131ndayd\u0131m. Gecemiz g\u00fcnd\u00fcz\u00fcm\u00fcz hep birlikte, ayr\u0131 d\u00fc\u015fm\u00fcyoruz.” \u015feklinde konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"

\u0130zmir’de 10 ayl\u0131kken SMA te\u015fhisi konulan, doktorlar\u0131n 2 y\u0131l \u00f6m\u00fcr bi\u00e7ti\u011fi, v\u00fccudundaki istemli kaslar\u0131 g\u00fcnden g\u00fcne g\u00fc\u00e7s\u00fczle\u015ferek eriyen 36 ya\u015f\u0131ndaki Hatice \u00d6zkan, 3 \u00fcniversite bitirdi.<\/p>\n","protected":false},"author":2,"featured_media":10289,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jnews-multi-image_gallery":[],"jnews_single_post":[],"jnews_primary_category":[],"footnotes":""},"categories":[13],"tags":[],"coauthors":[],"class_list":["post-10286","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-turkiye"],"_links":{"self":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/posts\/10286","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/comments?post=10286"}],"version-history":[{"count":0,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/posts\/10286\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/media?parent=10286"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/categories?post=10286"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/tags?post=10286"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/coauthors?post=10286"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}