Sivas’ta Spinal M\u00fcsk\u00fcler Atrofi (SMA) hastal\u0131\u011f\u0131 te\u015fhisi konulan 3,5 ya\u015f\u0131ndaki Elif’in hayata tutunabilmesi yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131.<\/p>\n
<\/p>\n
Fatih Mahallesi’nde ya\u015fayan 13 y\u0131ll\u0131k evli Murat-Z\u00fcleyha Ekici \u00e7iftinin 3 \u00e7ocuklar\u0131ndan en k\u00fc\u00e7\u00fc\u011f\u00fc 3,5 ya\u015f\u0131ndaki Elif’e 1,5 y\u0131l \u00f6nce SMA te\u015fhisi kondu. Kas erimesi nedeniyle aksayarak y\u00fcr\u00fcyebilen Elif, ayakta \u00e7ok fazla duram\u0131yor.<\/p>\n
K\u0131zlar\u0131n\u0131n durumuna \u00fcz\u00fclen ve tedavisi i\u00e7in gerekli oldu\u011funu belirttikleri 2 milyon lira tutar\u0131ndaki ilac\u0131 kar\u015f\u0131layamayan aile, Sivas Valili\u011finin izniyle yard\u0131m kampanyas\u0131 ba\u015flatt\u0131. Haz\u0131rlad\u0131klar\u0131 bro\u015f\u00fcrleri, sokaklara yap\u0131\u015ft\u0131ran ve sosyal medya hesaplar\u0131 \u00fczerinden payla\u015fan aile, k\u0131zlar\u0131 Elif’e uzanacak yard\u0131m elini bekliyor.<\/p>\n
Sa\u011fl\u0131k memuru baba Ekici, bas\u0131n mensuplar\u0131na yapt\u0131\u011f\u0131 a\u00e7\u0131klamada, k\u0131zlar\u0131 Elif’e 1,5 y\u0131l \u00f6nce SMA te\u015fhisi konuldu\u011funu s\u00f6yledi.<\/p>\n
Hastal\u0131\u011f\u0131 \u00f6\u011frendikleri andan itibaren hayatlar\u0131n\u0131n kabusa d\u00f6nd\u00fc\u011f\u00fcn\u00fc ve Elif’in tedavisi i\u00e7in \u00e7areler arad\u0131klar\u0131n\u0131 anlatan Ekici, “K\u0131z\u0131m\u0131n tedavisi i\u00e7in ithal bir ila\u00e7 gerekiyor. Bu ilaca ula\u015famazsak k\u0131z\u0131m\u0131 zor g\u00fcnler bekliyor.” dedi.<\/p>\n
“Elif’in umudu olun’ diye sesleniyoruz”<\/strong><\/p>\n Murat Ekici, hastal\u0131\u011f\u0131n ilerleyece\u011fini bildiklerini dile getirerek, \u015funlar\u0131 kaydetti:<\/p>\n “K\u0131z\u0131m\u0131n bacaklar\u0131nda ve belinde olan rahats\u0131zl\u0131\u011f\u0131 ilerleyen d\u00f6nemde kollar\u0131na ve ve parmaklar\u0131na vuracak. Hatta solunum kaslar\u0131na kadar etkilenecek. K\u0131z\u0131m\u0131n ihtiyac\u0131 olan ithal ilac\u0131n tek kutusunun maliyeti 140 bin 265 dolar. Elif’in tedavisi i\u00e7in ilk etapta 4 kutu laz\u0131m. Bu ilaca ula\u015fmak i\u00e7in herkesten, duyarl\u0131 insanlardan yard\u0131m bekliyoruz. Elif zamanla yar\u0131\u015f\u0131yor. Hastal\u0131k ilerledi\u011fi i\u00e7in sonras\u0131nda ilaca ula\u015fsak bile ayn\u0131 etkiyi g\u00f6stermeyebilir. Eriyen kaslar\u0131n geri d\u00f6n\u00fc\u015f\u00fcm\u00fc olmuyor. Y\u00fcr\u00fcme yetisini kaybetmeden Elif’in bu ilaca kavu\u015fmas\u0131 gerekiyor. Aksi halde yata\u011fa ba\u011f\u0131ml\u0131 hale gelecek. Fel\u00e7 olma riski de y\u00fcksek. 1,5 y\u0131l \u00f6nce \u00f6\u011frendik o g\u00fcnden bu yana duvar vurmu\u015f gibi t\u00fcm hayat\u0131m\u0131z sars\u0131ld\u0131. Ama bu ila\u00e7 sayesinde \u00fcmitlendik. En ba\u015fta Say\u0131n Cumhurba\u015fkan\u0131m\u0131zdan, Ba\u015fbakan\u0131m\u0131zdan, Sa\u011fl\u0131k Bakan\u0131m\u0131zdan yard\u0131m bekliyoruz. ‘Elif’in umudu olun’ diye sesleniyoruz. \u0130n\u015fallah bunu ba\u015faraca\u011f\u0131z. Umudumuz var. T\u00fcrk halk\u0131ndan Elif’e umut olmalar\u0131n\u0131 istiyoruz.”<\/p>\n “Ya\u015f\u0131tlar\u0131n\u0131 g\u00f6rd\u00fc\u011f\u00fcnde ne\u015fesini kaybediyor”<\/strong><\/p>\n Anne Ekici ise s\u0131k s\u0131k d\u00fc\u015fen k\u0131z\u0131 Elif’e yap\u0131lan tahliller neticesinde SMA te\u015fhisi konuldu\u011funu aktard\u0131.<\/p>\n Hastal\u0131\u011f\u0131n daha yava\u015f ilerlemesi i\u00e7in k\u0131zlar\u0131n\u0131n grip bile olmamas\u0131 gerekti\u011fini vurgulayan anne Ekici, “Parka g\u00f6t\u00fcrd\u00fc\u011f\u00fcm zaman ya\u015f\u0131tlar\u0131 gibi oynayam\u0131yor, ko\u015fam\u0131yor, merdiven \u00e7\u0131karken \u00e7ok zorlan\u0131yor, bu durum da beni \u00e7ok \u00fcz\u00fcyor. Elif’in y\u00fcr\u00fcmesi, ayakta kalabilmesi, okuluna gidebilmesi, arkada\u015flar\u0131yla oynayabilmesi ve en \u00f6nemlisi onun \u00fcz\u00fclmemesi i\u00e7in herkesin yard\u0131m\u0131na ihtiyac\u0131m\u0131z var. Alaca\u011f\u0131m\u0131z ilac\u0131n fiyat\u0131 \u00e7ok fazla, biz kar\u015f\u0131layam\u0131yoruz. O y\u00fczden yard\u0131m istiyoruz.” diye konu\u015ftu.<\/p>\n Z\u00fcleyha Ekici, Elif’in \u00e7ok hareketli, ne\u015feli ve parkta vakit ge\u00e7irmeyi seven bir \u00e7ocuk oldu\u011funu anlatarak, “Ama bu hastal\u0131ktan dolay\u0131 ya\u015f\u0131tlar\u0131n\u0131 g\u00f6rd\u00fc\u011f\u00fc zaman ne\u015fesini kaybediyor. Hi\u00e7bir zaman ne\u015fesini kaybetmemesi i\u00e7in deste\u011fe ihtiyac\u0131m\u0131z var.” dedi.<\/p>\n Elif’in ila\u00e7 paras\u0131n\u0131n toplanmas\u0131 i\u00e7in Ziraat Bankas\u0131’nda halas\u0131 Namiye Ekici ad\u0131na hesap numaras\u0131 a\u00e7\u0131ld\u0131. Hay\u0131rseverler, s\u00f6z konusu hesaba 1 y\u0131l i\u00e7erisinde yard\u0131mda bulunulabilecek.<\/p>\n <\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" Sivas’ta SMA hastal\u0131\u011f\u0131 te\u015fhisi konulan ve ilac\u0131n\u0131n tek kutusunun maliyeti 140 bin dolar olan 3,5 ya\u015f\u0131ndaki Elif’in hayata tutunabilmesini sa\u011flamak i\u00e7in Valilik izniyle yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131<\/p>\n","protected":false},"author":3,"featured_media":64933,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jnews-multi-image_gallery":[],"jnews_single_post":[],"jnews_primary_category":[],"footnotes":""},"categories":[13],"tags":[],"coauthors":[],"class_list":["post-64932","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-turkiye"],"_links":{"self":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/posts\/64932","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/comments?post=64932"}],"version-history":[{"count":0,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/posts\/64932\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/media\/64933"}],"wp:attachment":[{"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/media?parent=64932"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/categories?post=64932"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/tags?post=64932"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/www.nordicturk.com\/arsiv\/20122025\/wp-json\/wp\/v2\/coauthors?post=64932"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}